We really can't believe it...we were told early this a.m. after Benjamin was weighed and examined that we could pack up and head home! Barrett was at home waiting for us and danced all around Benjamin's car seat and proceeded to give him many "hugs". Needless to say we will be telling Barrett to be gentle a lot.
As far as what the near future holds for little Benjamin...children's scheduled all his follow up visits and it looks like we be there a good bit over the next few months as they monitor the progress of the TEF repair. There is a risk of stricture where the scar tissue narrows in the esophagus over time so in a month they will do another Esophogram to check the surgery site and it if it does narrow they will do an outpatient procedure where they dilated and then place a small "balloon" in the esophagus to stretch out the site. This isn't needed in every TEF case so we are praying that the healing goes well and the scar tissue is minimal. It is a little scary to think about any narrowing because of coarse that would mean food wouldn't clear the site as well and there could be choking...but they say it happens so gradually that we would begin to notice changes in the way he eats, ect.
We also mentioned last week that on a spinal ultrasound they saw a small cyst on Benjamin's lower spine. Our surgeon and the neurosurgeon at Children's want to do a MRI to rule out any issues and to get a complete scan of his back. Unfortunately they have to put him back under anesthesia so we are waiting four weeks so that they can place a breathing tube down his airway without damaging any of the surgical sites. Please pray that this scan is clear (or that the cyst is not restricting the growth of this spinal cord) and that we will need no more procedures.
Other than having lots of bruises from IVs and tape over his incision site little Benjamin looks as healthy as can be. He is a great eater and sleeps soundly between feedings. My mom says he is bound to be our laid back child...with all that he has been through in his first two weeks of life I don't know how he can't be laid back.
7 comments:
I am SO HAPPY to see the four of you at HOME, together, at last. Will continue to pray for Benjamin, both for his continued healing and also just for his life. I am so excited to be part of your community and watch your children grow, and look forward to the years ahead.
Wow, wow,wow! I can't believe y'all made it out of there in less than 2 weeks. Congratulations on the homecoming -- we rejoice with you.
What wonderful news!! We have had so many people praying for you guys and we will continue to do so. I'm so happy for your family. Hugs to all of you!
Lurenda :)
I hope that your first full day at home has been nothing but blissful!
I'm am so happy for y'all! It was so wonderful seeing little Benjamin at home in his precious bassinet yesterday. We will continue to pray for a full recovery. James is looking forward to spending some time playing with Barrett in the coming weeks! :)
Yeah, yeah, yeah, and Praise the Lord you are home. So glad and we will continue to pray. the whitleys
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